Entyvio · Health · Motivation · Sparkle · Ulcerative Colitis · Xeljanz

5 Years & Counting (I Wish Not)

Chances are, if your reading this, you know I started this blog as a place to talk about my journey with ulcerative colitis & other autoimmune diseases. I try to go along my journey with grace & humor, hence my name SparkleWithUC. There are, however, days that make you reflect on your journey & revisit the good, the bad & the downright ugly times that brought you to today.

This is me & Mr. Wonderful a few months before life changed for what I hope is a very limited amount of time. I hold out a unicorn believers type hope that there will be a complete cure & not just a bandaid for ulcerative colitis while I’m still alive, not that I have plans to go anywhere until I’m atleast 105.

This was Christmas 2011. No hint of disease….yet. 155lbs

Less than 6 months later, May 2012. I have been treated for hpylori with 2 massive doses of antibiotics & have been diagnosed with severe ulcerative colitis. 108lbs

I had to cut my hair because it was so thin & unhealthy. I would do this several times throughout the last 5 years just trying to look a little healthier than I actually was.

Prednisone puffy! The chipmunk cheeks became a cycle. I would complete a round of prednisone & flagyl with mild success. About the time the chubbo cheeks would disappear, I would be in another flair & need more prednisone.

More prednisone puff in 2013. I acted a lot like the bear snoozing between our heads in this picture. I was moody & no one dared wake me up without fear of “poking the bear”. I was in denial that there was a better treatment out there & would not ask my dr for help.

Fast forward through ups & downs & flairs & calm to 2015. Around the time of Cool Hand Luke’s 1st birthday, I was in such a bad flair that Chad pretty much dragged me to the dr. Thank God he did because I started on Entivyo 2 months later. Miracles do happen!

I look healthier & have energy! My hair is growing & I can see the division between new hair & the old stuff. My kids get more mommy time! There’s just too many positive changes to note them all!

I look like my 1st picture, except older, I mean, more distinguished. I know we grow older & we change but it’s so fabulous to change & age with time instead of prematurely because of illness & stress.

There’s always lessons to be learned from the experiences God allows us to get through or pushes us through. IΒ want to encourage you to deal with whatever “it” is because it’s not going away. If you are facing health decisions that need to be made, don’t sit back & let dr’s dictate your future. I cruised along with my head in the sand for several years thinking that I had to do what the dr said or my earth would shake & life would be over. I felt that I was the best I was going to be despite what I showed you in the pictures above, I was obviously not healthy. I had a few people around me who could see through the front I put up. They pulled me out of my comfort zone, to ask for better treatment & I am forever greatful for showing me patience & grace.


My seester!

My sister is one of those pushers. She has crohn’s disease & has had major surgery losing close to a foot of intestines. Who better for God to knock me upside the head with but my lifetime confidant & best friend. He knew I wouldn’t listen to someone who hadn’t been through the ringer herself.

By the way, did you know that God didn’t care for my opinion on the matter & he stacked the odds in my favor despite my stubbornness, as evidenced by my continued breathing. I want to always think that I have the control at my fingertips because I am a control freak, ask Mr. Wonderful, but there are times that I reflect on my journey & realize I was never in control & he has given me plenty of life’s lessons to prove it.

So, on this, my 5th anniversary, I am oh so thankful for more than I deserve in the blessings department. One such blessing is that I have learned more about natural health in 5 years than I learned the first 29 years of my life.

Also, my hair is growing back. Note to self (& you), never take hair for granted again!!!
Oh, & despite my 1st dr telling me that we should just take my colon out at age 29 with only 2 short months of unsuccessful treatment, I have every last inch of my intestines because I’m stubborn & fought to keep them.

So to you, the fighter, keep fighting & in the words of Dory, “just keep swimming.” You can do it!!!

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8 thoughts on “5 Years & Counting (I Wish Not)

  1. You are such an inspiration to me. I don’t have UC, I have a host of other autoimmune diseases and flares are the worst. Your courage has given me a new perspective on things. It has given me a lot to think about. Thank you for being who you are. “Just keep swimming” πŸ™‚

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