Entyvio · Health · Sparkle · Ulcerative Colitis · Xeljanz

More Great News

I already know I feel better than I did this time 4 months ago because I can move without pain. A coworker of mine who once followed me up the hallway after lunch commented on how I looked when I walked, all hunched over & guarded, in pain all the time. I couldn’t turn my head side to side or make sudden movements. I never thought that I would be pain free again because my body hurt so bad. Never say never, ever!

Today, as I sit in my rheumatologists office, waiting to tell her “I feel amazing!” I am thinking back on how I got her to prescribe me Xeljanz. It took a lot of talking & even some scientific research to get her to agree.

I first saw the Xeljanz commercial when I was watching the local news one morning while getting ready for school. It specifically stated not to take Xeljanz if you have cuts in your colon a.k.a. Ulcerative Colitis. One might think that I would never consider taking a medicine that said such a thing! Never ever say never! I knew that Xeljanz might be an option but I was a little leery with that disclaimer.

A few weeks later I was surfing some of the bloggers I follow & I found a blog entry discussing the findings of a clinical trial testing Xeljanz on Colitis patients. In marches my sparkling curiosity & I thought just maybe this might be it! It may not be a cure but it sure could potentially give me back some type of normal. It seems that the last few years since I was diagnosed with UC just went by in a blur because I was busy trying to make me well again & I feel like I missed some of life.

Maybe, just maybe Xeljanz would give me back some sparkle!

So this is when I decided to look fear in the face & try something new!


So I called my dr & asked, no, I begged her to look into the Xeljanz studies to see if there’s any sliver of a chance that it might work. She was skeptical & I secretly was too but I also knew there was a small chance that it might turn out to be amazing.

I am beyond happy to say that I sure know how to stun my dr. When I told her I have had no symptoms of my RA in the 4 months I’ve been on Xeljanz, she was stunned & my blood work will be back in 2 days to stun her more.


I hate being on medicine but I hate even more when I don’t feel like life-ing, so until there is a cure, my buddies Entivyo & Xeljanz are my new normal!

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