I haven’t even gone back for #8 yet & I’ve already had 2 sticks & pretty blue wrap.
I usually infuse at my dr’s office. In, out & on my way in 30 minutes or so. Not today! I had to go to an oncology center for my infusion. Actually, it is the same place that I had my iron infusions.
So, I didn’t expect the process of moving to a different infusion locale would be so frustrating.
Since a dr has to put the medicine order in, I have to see my blood dr again today even though I already have a follow up for my iron infusions in October. He did bloodwork today, hence the two needles before my infusion. After I see him, it’s time for Entyvio to work it’s wonderful magic!
I love “keep calm” signs but they didn’t have one that I liked for infusions so I made my own.
Update on Entyvio…it’s still working. In fact, this is the first infusion that I did not have to have a week early. I usually run a fever of 100ish about two weeks before my date with Entyvio so I usually call & get it early. I guess I’m too busy thinking about my big, little one going back to school, wondering if the hubs is having a good day, if babyman had a good day, lesson plans, what’s for supper….ya know, life…to feel any symptoms sneaking up.
I feel almost normal, like, 95% normal! I still have some days like today where my gut is not happy but 1 out of 31 is not bad at all.
I used to have to get up right after I started eating a meal or took a sip of something & head to the bathroom but that’s a very rare occasion now. My teacher friends at the lunch table will tell you that’s a huge difference from last year.
I have a teacher assistant/paraprofessional in my morning classes & rarely now do they have to take charge because I’m running to the bathroom. I have a new one this year for one period & I’m going to see how long it is until I need to tell her about my UC. Maybe I can go all year!!!
I have started sleeping through the night! YAY!!!!! This was one reason my energy was drained all the time. I still drag occasionally but not like I used to.
I could go on & on about the differences I see but the main point is that it’s working & I feel so much better. A dear friend & one of my teacher assistants told me today that she can just tell in my demeanor & body language that I’m feeling better & that’s what it’s all about! Maybe what she’s seeing is a bit of my old sparkle sneaking back in?