Colitis · Entyvio · Exercise · Family · Health · Motivation · Sparkle · Xeljanz

#11

Today is not so much about Entivyo infusion #11 going in but about the small successes in my health.

My blood dr showed me the various different iron reports that I’ve had since July 2016. I started with a 72 & it has steadily increased since my 2 Injectifer iron infusions last July. My current iron level is 88 which, according to doc, is absolutely perfect!

2 things that number means. 

1. My gut has healed dramatically since Entivyo infusion #1 on my birthday in October 2015. When a colitis patient is flairing, they lose blood, sometimes in small traces & sometimes in large amounts. In my case, it was a combination of trace & large amounts over an extended period of time. 
When I do something, I do it big!!!!! 
Over time the blood cells shrank & my iron production dropped. Once the iron infusions kicked in, the circumference of my blood cells grew increasing my iron levels to the perfect level it is today!

2. Iron makes all the difference in my world. 

* I have energy to play with my boys that I didn’t have at this time last year. 

* I have reached (& exceeded) the amount of weight I needed to put back on after my year long flair. 

* I don’t feel like I need a morning & afternoon nap everyday, just on the weekends & only because I like snoozing with the baby man & not because I’m falling down exhausted. 

*We just finished basketball season & im ready for track without feeling like I need a break. 

*I feel like exercising again & I try to do something active daily. 
I could go on & on about how I have drastically improved but I’ll let pictures do some talking.

January 2016

January 2017

 

My face is fuller! My skin has color to it, without being out in the sun! I see more energy in my eyes or maybe a twinkle of orneriness! I just look (& feel) so much more human!

I didn’t get sick over night. Well, actually, the HPylori that brought out the colitis was fast acting but the disease itself has been ongoing since 2012. To think realistically, it has taken more time to heal than it did to hit the bottom. I remember Chad asking me one day when I was weak & bone skinny if I was dying & he was very serious. Slowly over time, I have healed & this phrase rings true. 

It may not happen as fast as we want but God’s timing is always fabulous! I like to think I can sparkle even in the dark times but God is the one who makes the sparkle shine in the dark.

5 thoughts on “#11

  1. I’m very happy to hear that you’re healthier than ever.

    I’m suffering from Von Williebrand’s disease — abnormal bleeding time. And my hemoglobin is way too low. I had a blood transfusion — 5 bags few years ago. I’m feeling healthier now, too. Although, I have still have the disease, I just need to be cautious with my lifestyle but it’s better than dying, you know.

    Cheers to a healthier us!

    Love, Demi

  2. Hey! Thanks for the follow! I totally feel you on the iron, it does make all the difference. I know when my iron is low, I just fall asleep without even trying, it’s super frustrating when you have no energy. I hope you continue to do well, great job on the blog! Stay strong!

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