Entyvio · Health · Sparkle · Ulcerative Colitis · Xeljanz

More Great News

I already know I feel better than I did this time 4 months ago because I can move without pain. A coworker of mine who once followed me up the hallway after lunch commented on how I looked when I walked, all hunched over & guarded, in pain all the time. I couldn’t turn my head side to side or make sudden movements. I never thought that I would be pain free again because my body hurt so bad. Never say never, ever!

Today, as I sit in my rheumatologists office, waiting to tell her “I feel amazing!” I am thinking back on how I got her to prescribe me Xeljanz. It took a lot of talking & even some scientific research to get her to agree.

I first saw the Xeljanz commercial when I was watching the local news one morning while getting ready for school. It specifically stated not to take Xeljanz if you have cuts in your colon a.k.a. Ulcerative Colitis. One might think that I would never consider taking a medicine that said such a thing! Never ever say never! I knew that Xeljanz might be an option but I was a little leery with that disclaimer.

A few weeks later I was surfing some of the bloggers I follow & I found a blog entry discussing the findings of a clinical trial testing Xeljanz on Colitis patients. In marches my sparkling curiosity & I thought just maybe this might be it! It may not be a cure but it sure could potentially give me back some type of normal. It seems that the last few years since I was diagnosed with UC just went by in a blur because I was busy trying to make me well again & I feel like I missed some of life.

Maybe, just maybe Xeljanz would give me back some sparkle!

So this is when I decided to look fear in the face & try something new!


So I called my dr & asked, no, I begged her to look into the Xeljanz studies to see if there’s any sliver of a chance that it might work. She was skeptical & I secretly was too but I also knew there was a small chance that it might turn out to be amazing.

I am beyond happy to say that I sure know how to stun my dr. When I told her I have had no symptoms of my RA in the 4 months I’ve been on Xeljanz, she was stunned & my blood work will be back in 2 days to stun her more.


I hate being on medicine but I hate even more when I don’t feel like life-ing, so until there is a cure, my buddies Entivyo & Xeljanz are my new normal!

Christmas · Colitis · Entyvio · Family · Xeljanz

Infusion #10 Going In

I took Enbrel for 5ish years & Humira for 3ish years. (Don’t you just love my accuracy there ?). Well, never in those 8ish years did I ever get over the fact that I had to give myself a shot every week, in my thighs, that were very knotted from years of medicine. I still don’t like needles but I’m all in favor of my 8 week needle! It contains the necter of the Entivyo gods & man-o-man is it some amazing stuff!

Today is infusion #10! I fee like I’ve hit some kind of milestone. I’ve been on E for 419 days, but who’s counting. Last year at this time I was having my last loading dose & wondering if this drug could be my miracle or if it was just another step towards eliminating all my options before I had to have the ultimate option of colon removal. 


I’m beyond happy to report, typically every 8 weeks when I infuse, that I feel amazing! Someone who’s just met me might even think I was normal! Don’t be fooled though, it’s always in the back of my mind & I pray that it stays in the back where it belongs!

This time of year, thankfulness & blessings are on the forefront of our minds. I am beyond thankful for my infusion center, Texas Oncology, they are amazing everytime I come in. Everything always runs smoothly & they know me by name now. 

Today, the other patients & I were serenaded by carollers in the infusion room. Christmas is still about Christ no matter what the liberals try to push on America & they sang all my favorites. Away In a Manger, Joy to the World, We Wish You a Merry Christmas & of course Silent Night. Christmas is my favorite time of year!!!

If you’re still reading because my Christmas beliefs haven’t driven you away, have a very magical Christmas season & a happy New Year! I will be saying extra thank you prayers for another holiday season with my trusty old colon!

?? MERRY CHRISTMAS! ??

Colitis · Entyvio · Family · Health · Teacher Corner

The Countdown

I am officially ready for 2 weeks out of school!!! Let me catch you up on this semester at school which would not have run so smooth if my gut wasn’t happy.

It has been a little while since I taught Texas history so when there were some personnel changes at school, I was moved back to 7th grade classes. Ahhhhhhh! I love Texas history but I really, really, really enjoy teaching early US History because I can relate it to my semi-annual trip to Washington D.C. with 20ish hormonal, crazy, sweet & salty teenagers. I don’t mind the move because I have taught it before & just dove in head first. I just feel like my brain has not caught back up after the transition so a 2 week break is more than welcome. 


My 2 volleyball teams both won district championships!!! That is 3 in a row for this proud coach! ?

We are in a tough basketball district & one of my teams is 5 & 0, pulling out a nice final game before Christmas break last night!

I love what I do! I don’t even consider it work but I’m looking forward to family, my babies & my husband without anywhere to be in the evenings or any homework to do.


Speaking of homework, this was my peaceful view after a wacky weekend. I stared at the Christmas tree while I was trying to write my 2nd final paper of the day on Sunday & it must have given me inspiration because I finished it & my lesson plans faster than I usually finish just my lesson plans. Now I am just waiting on my grades. This semester was a tough workload but I survived. What doesn’t kill you makes you stronger! I am 33% of the way towards my masters degree!


Overall, my gut would generally react poorly to so much going on & so much extra stress but enter Entivyo stage left! This medicine, coupled with Xeljanz, has been a life changer for me! Before these all stars came along, even small stress stressed me beyond anything my gut could handle, but I am happy to report, I have not experienced any symptoms of colitis at all!!!!!!

So, with all that being said, the countdown to December 22nd begins! I am sooooo ready for crackling fires, baking goodies, Christmas movies with the boys, no homework for me or Jaxson, no games to play, time with my family & my hubbys’, no where to be & no stinkin alarm set! Merry Christmas to me!!!!! & happy Christmas season to you all!! May your stress be low & may you experience awesome blessings this holiday season.